Data Access Tiers
The All of Us Research Hub has a tiered data access model with three data tiers. One of the data tiers is for the general public, referred to as the Public Tier. The other two tiers, Registered Tier and Controlled Tier, are available to registered researchers only. This helps us protect participant privacy. These data include self reported surveys, physical measurements, wearables, and electronic health record (EHR) data. Genomic data are only available in Controlled Tier. You can find our Data Policies below. To learn more about our tiered data access model read our full Data Access Framework below.
The Registered Tier curated dataset contains individual-level data, available to registered researchers on the Researcher Workbench. This includes electronic health records, wearables, survey answers, and physical measurements taken at the time of participant enrollment. These data have been altered to protect participant privacy. Learn more about the data methods.
The Controlled Tier curated dataset is available to approved researchers who have taken additional steps and training to access these data. This includes genomic data, additional clinical fields in electronic health records, and additional demographic data from surveys that are suppressed or generalized in the Registered Tier.
Data Use Policies
Below you will find excerpts from each of our data use policies.
To read each full policy please download them below.
Ethical Conduct of Research Policy
- Know and follow all laws and regulations regarding research involving human data and data privacy that are applicable in the area where you are conducting research, including all applicable federal, state, and local laws.
- Know and follow the Common Rule principles as defined by The Belmont Report:
- Respect for persons. Participants must be treated as individuals with the ability to consider and make choices about their participation consistent with their own interests and goals. Vulnerable populations are entitled to additional protections from human subject research. This includes children, prisoners, and women who are pregnant.
- Beneficence. Researchers working with human participants must ensure participants’ well-being. Research should not intentionally harm participants, should maximize the possible benefits, and should minimize any potential harm.
- Justice. This principle requires that the benefits and harms resulting from research be distributed fairly amongst people by using ethical inclusion and exclusion criteria. Researchers must ensure that people benefit from their research according to need and not affordability.
- Understand that non-human subject research can still cause psychological, social, and economic harm even if the risk for physical harm is low.
- Understand the effects your research results can have on communities and society.